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    Infectious Disease Prevention Section
    Mail Code: 1927
    PO BOX 149347 - Austin, TX 78714-9347
    1100 West 49th Street, Suite G401
    Austin, TX 78714

    Phone: (512) 776-7676
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CJD Resources Handout (PDF)

National Prion Disease Pathology Surveillance Center

Supported by CDC, NPDPSC was established to help monitor the occurrence of prion diseases in the United States. The center is located in the Division of Neuropathology at Case Western Reserve University.

THE CJD FOUNDATION 

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. The CJD Foundation provides support to families through maintaining a 7-day Helpline, referrals, support groups, and teleconference speaker series. They have an annual family conference in Washington DC and have family workshops around the country. They provide education and information for families, caregivers, medical professionals, and funeral professionals. They have a research grant program, disseminate research findings, and collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations. They also actively advocate for the development of a response through public policy. 

For more information contact:

Centers for Disease Control and Prevention (CDC)

World Health Organization (WHO)

Bovine Spongiform Encephalopathy (BSE or “mad cow disease”)

Chronic Wasting Disease (CWD)

Last updated July 28, 2021